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Steven C Altabet, Ph.D
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The Dialogue of Autism #12

3/29/2014

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                                                    The Use of Routines in Skill Building 

One of the hallmark features of people with Autism Spectrum Disorders is a strong preference for routine behavior.  The routines can appear nonsensical and interfering for outside viewers, but may hold significant importance for the person with ASD.   Routines frequently allow the person with ASD to engage in established behavior patterns without having to integrate much new information, which can be potentially overwhelming.  From what I've observed over the years, I believe that the need for routine is so strong for people with ASD that it cannot and should not be extinguished.  Instead, the need for routine can be used as a strength in skill building, independent behavior, and eventually employment.    

One of the easiest ways to incorporate routines in a positive way is with the establishment of morning and bed-time routines.  Building on the last post about task analysis, set up a stepwise procedure for getting ready in the morning for school or work and for getting ready in the evening for bed.  The steps should be consistent with the person's abilities and preferences so the individual will be able to complete the procedure with little to no resistance.  Help can be provided when needed until the person feels more comfortable completing the steps independently.  A routine is established when these procedures are repeated daily.  The repetition over time will allow the person to have comfort and familiarity with what is expected, typically resulting in less resistance and more independence.  Routines can be used for a multitude of behaviors including self-care, homework, and work related tasks.  

Some care must be used in establishing routines, however, as once a routine is established it is very difficult to break or modify.   Make sure that the routine is set up in a way that it can be carried out consistently.  For example, if the morning routine takes a specific amount of time then it is imperative that the necessary amount of time is available in the person's schedule for completion of the routine.  Consistency of routines needs to be across settings and people as well as time.  A new job coach or supervisor needs to allow the employee with Autism to work within their regular routine.  The same with a new teacher or caregiver.  

That does not mean that routines are unchangeable.  Sometimes routines need to be altered for legitimate reasons.  For altering the timing of a routine, show the person with ASD the proposed time change on their calendar and explain and reasons and logistics of the change.  For example, if a morning routine needs to start earlier in the day, the person may need some assistance in resetting their alarm or be shown on a clock the new time for the routine.  If the steps of the routine need to be altered, review the new task analysis (list of steps) and show the person with ASD how it is different.  Some practice sessions may be needed with the new routine before it is formally adopted.    

There are many jobs and activities in society that require repetition and routine for success.    Since people with Autism have a natural tendency for this type of behavior,  using routines for developing skills and independence can not only be helpful for the person with Autism individually, but can help the people with Autism get more opportunities to make greater contributions to society in general.    

Steven C. Altabet, Ph.D.
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The Dialogue of Autism #11

3/23/2014

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                                                Task Analysis - Breaking it Down

Many people with Autism have deficits in Executive Function (EF).  EF refers tot he brain's ability to organize information and regulate your thoughts and actions.  Some people refer to EF as the 'brain's secretary.'  Without a well developed EF, people are unable to organize all of the information they receive and thus have difficulty planning out and completing even the most activities without becoming overwhelmed.  This can lead to individuals resisting activities even when there is positive incentive for completion.  for people with a poorly developed EF, the effort and emotional stress associated with doing activities requiring organization and planning exceeds and positive consequence they may receive for completion.  This avoidance is often more powerful and negative consequences for incompletion as well.

Fortunately, there is a method helping people with poorly developed EF to complete activities and develop skills.  Applied Behavior Analysis (ABA) therapist call this a Task Analysis.  A task analysis refers to breaking an activity down into a series of short discreet steps.  These steps are then put on a picture or word list for the person to use as a reference.  This allows the person with an EF deficit to only have to think about one small step at a time.  Organizing thoughts or keeping track of multiple steps is not required saving the individual from being overwhelmed and making them more likely to attempt and complete the activity.  For example if one wanted to make a task analysis for washing your hands, it look like this:

1. Turn on cold water 1/2 turn 
2. Turn on hot water 1/2 turn
3. Place both hands under faucet.
4. Squirt soap on hands.
5. Rub hands with soap.
6. Place hands under faucet again.
7.  When soap is off, dry hands with towel.
8. Turn off water.

This can be modified to meet the person's needs.  Some may need pictures or less words, but this type of approach can be used for not only simple tasks like this, but for more complicated tasks as well (.e.g. school assignments, chores, work activities, finances, etc.).  In general if a person with EF deficits is resisting a task it is likely because they perceive the task as either too larger or too difficult.  Often times a task analysis can make the activity seem less daunting.

The other key aspect of the task analysis is the list itself.  Having the reference list with the individual steps is highly important.  It allows the person to see the steps so they do not have to think about them.  It also helps because the person realizes that if they forget a step they can refer to the list.  This further creates a sense of independence because if the person has access to the list (and understands it) they do not have to rely on others to tell them what to do.  If a person can complete a task independently that they were once not able to do, the sense of accomplishment is often greater than any reward or incentive that is given.

Steven C. Altabet, Ph.D.         
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The Dialogue of Autism #10

3/13/2014

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                                                            Positive Use of Routines

The strong need for routine by most people with Autism can often lead to distress and challenging behavior whenever a routine is interrupted, postponed or changed in some way.  However, this same need for routine can also be used to  help people with Autism learn new skills and increase their independence.  Many people use routines in their everyday lives to help get ready in the morning for work or school and in the evening to get ready for bed or the next days activities.  

When teaching people with Autism, any new skill can be made into a routine by taking the steps of that skill and repeating them THE SAME WAY each time the person performs the skill.  It may take several, if not more, repetitions before the routine is learned, but once it is the person with Autism will be able to perform the task based on rote memory rather than conscious processing.  In other words, the individual will not have to think about what to do.  They will automatically know it.  Once the knowledge/procedure becomes automatic
then a simple cue may be all that is needed to allow the routine to be completed independently.  Routines are not just for morning and evening preparation, but can be used for self care, chores, homework, paying bills, and other independent living skills.  When routines are incorporated into a schedule (see previous post) they can be more easily remembered and carried out with less prompting. 

While routines can be helpful for strengthening skills, they can also contribute to resistance to change if certain safeguards are not put into place, namely generalization and transition.
Generalization refers to the ability to transfer new skills or knowledge across different situations (e.g. people, settings, and times).  People with Autism typically have difficulty with generalization, unless the generalization is built into the training.  That involves the person perform the new skill/routine with different people, in difference places, and at different times.  More details on generalization will be described in a future post.  In addition, there are times when a routine needs to be changed for reasons that cannot be helped.  Many people with Autism also have difficulty with transition and sudden change.  Adaptation can also be incorporated into training.  Once the base routine is established, flexibility can be trained by introducing small changes into the routine (one change at a time) and giving the person advance warning about the change(s).  Transition strategies will also be discussed in more detail in future posts.  

By using routines to help teach new skills and encourage independence, a characteristic that was once seen as a weakness can now be viewed as a strength.  some people view this as compensation.  I see it as taking your natural gifts and using them to your advantage.  This theme will be emphasized in many of the upcoming posts.     

Steven C. altabet, Ph.D.
 
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The Dialogue of Autism #9

3/7/2014

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                                                       Respect the Schedule


Last week's post provided an overview of how Positive Behavior Support (PBS) strategies could help establish a calm and predictable environment that allows the person with Autism to slowly be able to explore their world and learn new skills.   Over the next several weeks specific PBS strategies will  be outlined to help put these principals into practice.  It is important to remember that each of these strategies will need to be tailored to the individuals' preferences and abilities, but hopefully this will give you a general direction in which to start.  Also keep in mind that each individual may respond better to some PBS strategies over others, so do not get discouraged if one of the strategies is working more effectively than the others.   


The first PBS strategy to be discussed is establishing a schedule.  This is typically the first strategy offered by therapists who serve individuals with Autism because it provides the foundation and reference point for all of the others strategies.  Setting up a schedule establishes a predictable routine and sets up expectations for the day, week, work routine, etc.  Schedules are most effective when they are consistent with the person's abilities (e.g. using pictures for those who communicate nonverbally) and the schedule is reviewed with the person prior to starting the activity.  Here are some examples of different types of schedules:


Daily Schedule - List the daily activities in the order that the person is expected to do during the day.  This is just as important for home as it is for school.  Include daily self care routines/activities as well as time for school work, chores, free time and play.  Inclusion of preferred activity in the schedule is very important so the person knows there is something positive to look forward to.  Sometimes placing a preferred activity directly behind a work or chore activity can serve an incentive for completing the work.  With individuals who go to school or work, it may be important to schedule some free/down time immediately upon returning from school or work so the person can wind down from the stressful day before having to exert more effort and concentration.  Transition times are typically best when they are 30 minutes or less because if the persons with Autism relaxes too much it will take too much effort for them to get started again.  Nonnegotiable/special interest activities need to have their own place in the schedule.  This schedule should be reviewed daily, with any changes in the schedule reviewed prior to the change.


Weekly/Monthly Schedule - This is typically used for scheduling special events that are not part of the daily routine.  This could include a family trip, visit to a doctor (if not a regular appointment), or a holiday.  The idea behind this is to prepare the individual for the changes associated with these special events.  This type of schedule can also be helpful with planning long range work projects or term papers by having different stages of the project scheduled intermittently.


Work Schedule - Work activities can be more easily completed when the work is broken up into a series of discreet steps and the steps are detailed on an ordered list.  Including time constraints may be important for some individuals so they become aware of how much time/effort to devote to a specific activity.  For those who are more obsessed with time, however, the inclusion of time constraints may make the person too anxious and interfere with their ability to complete the activity.  


Once these schedules are established programming for educational, social, and family activities becomes easier.  They key is for consistent review of the schedule with the schedule being visible, understandable, and accessible.  The schedule can always be used as a reference during periods of uncertainty.  Consistency in reviewing and implementing the schedule is necessary, as it may take some time for the person to get used to following it.   Once the person with Autism gets used to the schedule, however, it will be hard for the person with Autism, as well as the people supporting them, to imagine life without it.


Steven C. Altabet, Ph.D.          
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The Dialogue of Autism #8

3/1/2014

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Hi all,
Thanks again for coming back. For those of you who are new to this series, the first seven posts focused on interaction techniques aimed at better connecting to people with Autism Spectrum Disorders. The next several sessions will focus on Positive Behavior Support that I consider the behavioral foundation for working with people who have Autism.  Today's  post will review what Positive Behavior Support is, along with a general philosophy of the approaches.  The more specific/technical aspects of the approaches will come in later posts. 

Positive Behavior Support is a form of Applied Behavior Analysis (ABA) that focuses on strategies primarily aimed at preventing problem behaviors and correcting inappropriate behavior by emphasizing appropriate alternatives.  The strategies are set up to be consistent with the way a person with Autism frequently thinks and processes information. In general Positive Behavior Support are driven by the following guidelines.


Key Aspects of Positive Behavior Support

Prevention - The majority of strategies discussed will be aimed at preventing problem behaviors from occurring, either by setting up the environment for a successful interaction or by teaching alternative behaviors that may reduced the need for or take the place of a problem behavior. 

Predictability - All strategies discussed will be presented in a way the is consistent with the person with Autism's need for predictability.    People with Autism tend to respond much better when they can anticipate an action or predict an outcome.

Expectations - A major focus of the approaches will center on letting the person with Autism know what to expect.  People with Autism typically thrive on expectation when the expectation is clear and is presented in a way that attainable (see section on Teaching and Gradual).

Consistency - Consistency is very important with any type of intervention, because consistency allows for a sense of predictability, which is important for reducing anxiety and resistance. 

Positive - Nobody likes to experience negative news, feedback, or consequences.  However, people with Autism tend to be more emotionally sensitive than most (even if they have difficulty expressing it) and the negative feedback or consequence tends to result in such an intense reaction that the person with Autism is often unable to process the situation and learn from result.

Teaching - Once a calm and predictable environment with positive expectations can be gained through the teaching of skills.  The assumption in most cases is the person with Autism is behaving inappropriately because they do not know of a better that way will work for them.  It is our job to teach them that better way.   

Gradual - Because of a person with Autism's sensory and neurological sensitivities, the teaching typically has to be done gradually to be effective.  Information that is presented too quickly or is too large in scope will be overwhelming and met with resistance.  A gradual approaches ensures a positive experience and greater willingness to participate in the next lesson. 

Physical - Because Autism is a neurologically based disorder, helping the person achieve an optimal physical state is important for helping the person concentrate and control their impulses/emotional reactions.  It takes quite a bit of effort for a person with Autism to concentrate and control their behavior and fatigue can certainly impair that ability.  Factors that can positively or negative affect physical functioning are sleep, nutrition, exercise, and stress. 

Natural - All behavior has consequences, some immediate and some long term.  Either way, Positive Behavior Support emphasizes the natural consequences that go along with every behavior.  It also helps the person with Autism understand those consequences so they can act in a way that best benefits them.  

That is all for now.  Again, this was just a philosophical overview.  Next week's post will begin to explore specific Positive Behavior Support strategies.

Steven C. Altabet, Ph.D.   

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The Dialogue of Autism #7

2/21/2014

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Hi all,

As we conclude with this series, the focus shifts to social approaches.  If you are new please refer to earlier posts regarding communication and emotional approaches to connecting to people with Autism.  While this is the final installment regarding making connections to people with Autism, the series will continue with weekly posts about various topics concern people with Autism Spectrum Disorders.  Please feel free to suggest topics for further discussion. 

Social connections can be made with people who have an Autism Spectrum Disorder, but the connection has to be made in a way that is consistent with the person's social abilities.  Avoid the small talk, as it is difficult for most people with Autism, and many of my clients have reported to me that it is unnecessary.  It might be best to connect first through a structured game or activity.  This will relieve some of the anxiety as the focus of the interaction is on a specific activity and not conversation.  The initial games and activities should be ones the person already knows, because there will often be an increase in anxiety when a person with an Autism tries to learn something new.  New games can be tried once a connection is made and the person gains trust.  The other aspect to remember with game play is that people with Autism often have difficulty multitasking, so the prospect of trying to have a social conversation while playing a game may be very difficult.  Conversation during game play should primarily focus on the game itself.  If conversation ends up being about another topic, it may be difficult to redirect the person back to the game.  

When trying to connect to a person with Autism through conversation, it would be helpful to start by talking about a topic of interest to them.  However, the person with Autism may assume that there is an equal knowledge base for both parties and may speak to the other person like an expert unless they are informed otherwise.  Eventually the conversation can turn to shared interests, taking turns talking about the subject, and eventually being able to converse solely about the other person’s interests.  Using humor is always a fun way to connect, but difficulties with abstract reasoning can make it difficult for a person with Autism to understand humor.  Make sure the humor is obvious to the person when joking and, if the joking is personal, ask them if it is ok to joke around before doing so.  Many people with Autism misinterpret the intentions of gentle teasing and become insulted.  Finally, when trying to explain a concept or rationale to a person with an Autism make sure they understand how the concept relates to them personally.  People with an Autism tend to see things only from their own point of view and thus may not understand the importance of what is being said unless it is made clear to them how the information can benefit them.


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The Dialogue of Autism #6

2/14/2014

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Hi all,

This is part 6 of a series focusing on techniques for connecting to individuals with Autism.  This weeks sessions continues to discuss the emotional approach.  Another important aspect of the emotional approach is providing a rationale for thoughts, beliefs, and requests.  Due to difficulties with perspective taking and Theory of Mind, the person with Autism often does not understand the other person’s point of view and typically only understands information in terms of how it affects their personal world.  Therefore, in order to connect with a person like that, it is important to help the person understand the other person’s point of view or in other words ‘why is this being said this to them?’  This helps the person with Autism realize that the other person has unique thoughts and feelings and that they are not speaking or acting arbitrarily or out of malice.   The other aspect of providing rationale is that it can be explained how what is being said affects the other person.  Sometimes this may be describing a potential outcome, while other time it may be explaining an expectation.  For example, if a teacher is wishing for a student to complete their work the teacher may have to show the person with Autism how the work will help them with their life.  The work may have to relate to an interest to get their attention.  If the goal is for the student to speak more respectfully, then it may need to be explained that respectful language not only is an expected behavior, but it also makes others feel happier when they hear it.  Once the student understands and accepts the rationale, the student can then be taught specific skills needed to fulfill that behavior.  This is very important when providing social skills training.  Without a clear rationale for engaging in socially appropriate behavior, the student is unlikely to be motivated to use the skills being taught.  
The final aspect of the emotional approach involves the ‘power struggle.’  Being steadfast and true to one’s beliefs is often seen as a positive quality.  When this is done to an extreme it is seen as stubbornness.  It is extremely different for a person with an Autism to change their thoughts and beliefs (remember the train analogy) and when they do so it is typically on a gradual basis.  In addition, when one only sees the world from one’s own point of view, the concept of a hierarchical authority structure does not make much sense.   Therefore, to expect a person with an Autism to listen just because the speaker is an adult and the student is supposed to listen is not realistic.  If a person with an Autism is forced to bend to the adults will, the adult will likely break before the person with an Autism or someone may end up getting hurt.  In those situations it is often best to best to state the request and rationale, explain the consequences (positive and negative) for action and inaction, give the opportunity/choice to comply, and then provide the consequence based on the response.  In my sessions, when a client is resistant to discussing a topic, I will bring up why it is important to discuss the topic but conclude with, “you can tell me about this when you are ready.”  We then proceed to other topics, but I will ask them the next session if they are ready to discuss the topic of resistance.  Progress in therapy is typically slow with this approach, but there usually is gradual progress and the client typically increases their responsiveness and willingness to discuss their emotions once they realize that they will not be pushed beyond what they feel they are capable of doing.  It may be frustrating to see progress being achieved so slowly, but slow progress is better than no progress and gentle persistence can help the person with Autism learn to advocate for themselves in a more respectful manner.  

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The Dialogue of Autism - #4

1/30/2014

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Hi all,
Hope you've enjoyed the series thus far.  If you missed any pieces of the series, please review the archive section.  New posts will be written on weekly basis, typically premiering at the end of the week.  The next installment of this dialogue focuses on taking an emotional approach that helps the person with Autism feel more comfortable.

When trying to connect with another person, it’s not just connecting with words but with emotions as well.  The same is true for connecting to people with Autism.  The difference is, however, that the emotional approach is not the same.  For example, while a bright energetic approach may be attractive for many people it is typically not attractive to people with Autism and those with sensory sensitivities.  In fact, this level of excitement, especially from an unfamiliar person, could be quite overwhelming and aversive.  Anxiety is already high in these instances and the high excitement level often makes the situation unbearable.  So, instead of trying to be a reinforcing or engaging presence, this type of approach seems to have the opposite effect.  As parents and educators, the natural tendency is to show our excitement when our children and students do well, but any person would not want to perform well when the consequence of that performance causes sensory overstimulation.  Therefore, when approaching a person with Autism it is best to take a calm approach.  Shows as little affect as possible during the initial stages and then gradually increase your emotional expression as the person with Autism becomes more comfortable with you.  Don’t assume that if the person with an Autism shows more affect that it is a cue for you to show more emotion.  People with Autism are often better at giving sensory stimulation to others rather than receiving it because they can control the level of stimulation they will be experiencing and are prepared to experience it.  When receiving stimulation, the receiver is typically unaware of the amount of stimulation they will be receiving and may not be prepared to accept it.  

Steven C. Altabet, Ph.D.






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The Dialogue of Autism # 3

1/24/2014

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The next installment of this dialogue continues to focus on communication with an emphasis on preparing the listener.

The final communication aspect to be discussed is preparation.  What is meant by preparation is that people with Autism typically like to know what to expect and become flustered with change that is not anticipated.  This goes back to the assertion that people with Autism have difficulty shifting their thoughts quickly.  This appears true for conversation topics as well as activities.  When wanting to change the topic, let the person with Autism know the intent to do so.  Qualifiers such as “Speaking of ….” Or “that reminds me of …” can be used, or simply stating that you’d like to talk about something else will also work.  When a person with an Autism wants to change the subject they may impulsively blurt out the new topic.  If they do this, it is ok to acknowledge that the individual would like the topic changed, but then show them how to change the topic more appropriately before proceeding.  Also, they may need to be reminded to allow the speaker to finish their thought before they can speak.  The other type of preparation that is important for conversation is preparation for ending the encounter.  In addition to warning the person that the conversation needs to end, tell them why this needs to happen.  They’ll likely want to say one last final thought for closure.  Frequently, when the person with an Autism wants to end a conversation they typically just stop talking.  Sometimes, however, the pause is just for the person to collect their thoughts and continue speaking.  When you hear an extended silence it is ok to ask “do you have any more you wish to say?” if they say “no” then you would want to model appropriate conversation enders like “good bye,” “see you later,” “and it was nice talking to you.” 

I hope you are finding this discussion helpful.  If you like this discussion or would prefer discussing another topic, please let me know.

Stev  
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The Dialogue of Autism - #2

1/16/2014

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Hi all,

This is a continuation of a series I started with my last post focusing  on how to better connect with individuals diagnosed with an Autism Spectrum Disorder.   For the purpose of these posts I am referring to individuals on all levels of the Autism Spectrum with the term 'Autism.'  The previous posted emphasized communicating in a direct form and not becoming offended when that direct form of communication is given to you.    


This weeks recommendation for communication is succinctness.  People with Autism tend to only be able to process a few words at a time, so long monologues and lectures tend to go misunderstood.  After the first few words, the person’s thoughts are likely to go somewhere else like “When can I leave this long conversation and tend to my personal interests?”  If they are truly interested in being part of the conversation they may be thinking of what to say next instead of taking in everything that you are saying to them.  Keeping messages short and to the point will helpful them be understood better.  If there is much to be said, then break it up into many smaller segments.  When it comes to expression, people with Autism will typically speak to you in a very succinct manner, unless it is about a preferred topic, then the person will likely respond in a wave of details.       

When dealing with literal thinkers, you want to be very specific with what you say.  People with Autism often misinterpret generalities due to poor ability to inference.  Therefore, when trying to get a specific message across say it exactly the way it was meant to be interpreted.  Try to phrase questions in a way that results in either a yes/no answer or can be answered in a short phrase or sentence.  Open ended questions will typically result in blank stares or awkward pauses, while the person tries to figure out what was meant or how to answer the question.  If the listener appears hesitant offer some options for possible responses.  For example, if you ask “What do you want to do today?” and you get a blank stare or “I don’t know,” you could suggest a couple of activities for the person to choose.  If making a choice is too difficult, suggest a specific activity and they could answer “yes” or ‘no.” 
 
Sometimes you may have to use visual supports to further explain or demonstrate what is being conveyed.  Visual supports can be any type of item or action that helps the person with Autism see what is being explained to them.  Examples of these include pictures, charts, diagrams, gestures, modeling, and physical demonstration.  If a picture is worth 1,000 words to a typical person, it is worth 10,000 words to a person with Autism.   Conversely, if a person with an ASC is having difficulty explaining what they mean, instead of trying to have them say it differently or guessing at what they meant, have them draw or act out what they are trying to convey.  Even with the visual supports there will still be times when there is uncertainty over what has been stated or received.  While most of us may ask for clarification when we are unsure of a message, many people with Autism typically ask very few questions.  They may simply guess at the meaning rather than asking “What did you mean by that?”  Therefore, it important to make sure the person with Autism knows your intention.  If most people with Autism are asked if they understood what was just said, they will be honest enough to report if they did not understand.  For those who are less willing to admit this, it will not offend the person if they are asked what they believed the message meant.  Also, person with Autism’s message may not always be clear, especially if they are using any type of jargon or slang.

As always, I welcome and comments or questions.

Steven C. Altabet, Ph.D.  

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    Steven C. Altabet, Ph.D. Licensed Clinical Psychologist with a specialty in Autism Spectrum Disorders  

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